
Vol. 1, No. 3, 1998
Free Abstract Article (Fulltext)
Article (PDF 220 KB)
The National Dialogue on Genetics College Park, Maryland, March 21–22, 1998 Guest Editors: Ilana S. Mittman, Washington, D.C.; Victor B. Penchaszadeh, New York, N.Y.; Marian G. Secundy, Washington, D.C.
Paper
A National Dialogue on Genetics and Minority Issues
IlanaSuez Mittmana, MarianGray Secundyb
a Division of Medical Genetics and b Program in Clinical Ethics and Department of Community Health, Howard University College of Medicine, Washington, D.C., USA
Address of Corresponding Author
Community Genet 1998;1:190-200 (DOI: 10.1159/000016162)
Key Words
- Dialogue
- Diversity
- Minorities
- Community
- Genetics
- Policy
Abstract
This paper summarizes two-day deliberations on issues of genetic services and diverse communities, attended by experts representing genetic consumers, representatives of diverse communities and genetic providers/scientists. The discussions held in round table dialogue sessions focused on the following subjects: Inclusion of ethnic/racial minorities in bio-medical research; ensuring minority access to genetic services; consumer protection in genetic testing and empowering minority communities to take part in genetic research and service provision. The discussions are vividly illustrated by the presentation of numerous quotes obtained from transcripts of the sessions held. The paper concludes with useful recommendations for genetic providers, educators, scientists, and policy makers on the issues of involving diverse communities in the various aspects of the new genetics.
Author Contacts
Ilana S. Mittman, MS/CGC Division of Human Genetics Seely/Mudd Bldg., Room 433 Howard University, 520 W. Street, NW Washington, DC 20059 (USA)
Article Information
Number of Print Pages : 11
Number of Figures : 0, Number of Tables : 0, Number of References : 6 |
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