Original Paper

AIDS and Haemophilia
A Study among Dutch Haemophiliacs on the Psychological Impact of the AIDS Threat, the Prevalence of HIV Antibodies and the Adoption of Measures to Prevent HIV Transmission
Frits R. Rosendaal^a, Cees Smit^a,b, Inge Varekamp^c, Annette Brocker-Vriends^d, Theo P.B.M. Suurmeijer^c, Ernest Briët<sup>a

a</sup>Department of Haematology, University Hospital Leiden, The Netherlands;
^bDutch Haemophilia Society (NVHP), The Netherlands;
^cDepartment of Medical Sociology, State University Groningen, The Netherlands;
^dClinical Genetics Centre Leiden, The Netherlands

Address of Corresponding Author

Haemostasis 1988;18:73-82 (DOI: 10.1159/000215786)

  Key Words

• Haemophilia
• AIDS
• Psychology
• Antibodies
• Prevention

  Abstract

More than 75% of all Dutch haemophiliacs participated in a mail survey that included a section on acquired immunodeficiency syndrome (AIDS). Although no cases of haemophilia-related AIDS had been reported in the Netherlands at the time of our survey, the threat of AIDS had caused considerable anxiety among Dutch haemophiliacs. This had led almost a third of the patients to change their therapy schedules. These changes were mostly not beneficial and possibly counterproductive, since they were not likely to reduce the risk of human immunodeficiency virus (HIV) infection. Measures that were advised to prevent HIV transmission, such as the use of condoms, were seldom carried out, even by the 17% seropositive individuals. We conclude that an increase in the informational efforts towards the patients is called for to avoid ill-advised treatment changes and to enhance preventive behaviour.

Copyright © 1988 S. Karger AG, Basel

  Author Contacts

Dr. E. Briët, Department of Haematology, Building 1 C2-R, University Hospital Leiden, PO Box 9600, NL-2300 RC Leiden (The Netherlands)

  Article Information

Received: September 18, 1987
Accepted in revised form: November 20, 1987
Published online: April 23, 2009
Number of Print Pages : 10